Chloe Chenoweth is no stranger to fighting for a breath of fresh air, but now she hopes that a double-lung transplant will allow her to keep her head above water for several years to come.
Chloe was born with cystic fibrosis, an inherited terminal lung disorder, and has been taking multiple medications while engaging in physiotherapy to maintain her lung capacity.
But because of the progressive nature of the disease, her lung capacity is now well below 50 percent.
Chloe has been listed for the transplant in early June and from then she will be waiting for a phone call to inform her whether it will go ahead.
“We are trying to raise some money to support my family during that time. We will stay in Melbourne for three months so there will be significant accommodation costs,” she said.
“Back here it at home I still have my rent and my family have all of our bills. My Mum and Dad have had to take time off of work to come and be with me. We hope to get my siblings over to see me as well.”
Chloe’s operation is paid for by the government and the Patient Assistance Transport Scheme contributes a percentage towards the accommodation costs.
This still leaves a lot of hidden costs for Chloe’s family, including meals, toiletries, flights, remaining accommodation costs and living costs for their own houses.